This past week has been crazy insane! There is no better way to put it. In fact, the last several weeks since coming home from Christmas in Oregon has been crazy. But, isn't that how life typically is?
This week has been one of frustration for Amanda, and for me, too, as her mom. Seeing your child hurt and being unable to help them is not a fun situation to be in. Amanda suffers from migraines (just like her mama), which I feel so horrible for her. I would never wish it upon anyone to have migraines. Amanda's migraines have been very well controlled for 2 years, from when she was first hospitalized with them at the start of her diagnosis.
Monday started off as a typical day but by afternoon time Amanda was hit with a migraine. And this migraine proved to be a bear!! Nothing we did could control it and break its vicious cycle, and ultimately after spending 14 hours in the Phx Children's ER, Amanda was admitted to the hospital for IV pain meds (after 14 hours of pain meds in the ER, too) and so we settled in, even though neither of us really wanted to be there.
We have the most AMAZING neurologist who truly cares for her patients and wants what is best for each one individually. We opted to keep Amanda and extra night in the hospital, (decision made by the doctor and I) and would reevaluate how she was doing on Saturday (today).
So, after day 6 of a migraine, it is still not totally gone, but has diminished in intensity considerably, from a 10 to a 5. As a result, we will be going home to have close outpatient monitoring on prescription meds.
These past several days has been a test of my faith in God. I prayed more fervently than I have ever prayed in a long time. Don't get me wrong, prayer is very much a part of my life, but I definitely "hit the floor" starting Thurs for Amanda's healing and for NOT staying in the hospital. But, as my life verse says, For I know the plans I have for you declares the Lord...., God's will ultimately was for Amanda to stay in the hospital to get aggressive care that would be impossible to have outside the hospital. I am not upset with God's will; I embrace His will in everything to the best of my ability. Despite all the tears cried and the feeling of deep despair I endured, I knew I was not alone, and I knew Amanda was not alone. Each tear I cried fell right where they were intended to fall, down my cheeks right into the hands of God.
Amanda is not out of the woods 100% yet, but making great progress!
My God is faithful, and truly has the perfect plan for each of our lives!
Saturday, January 21, 2012
Wednesday, January 18, 2012
What's a girl supposed to do?
The life of a child is supposed to be one filled with excitement, fun times, and just all around great memories being made. But, what is a child to do when life throws them a curveball and says to not only be a child, but also deal with this, and this, and oh a little bit of that, too? That child just perseveres and displays a sense of strength and beauty despite what they are enduring.
Amanda is such an amazing young lady. Perhaps I am a little biased being her mom and all, but truthfully, she awes me with her determination in all things no matter what is thrown her way. She has endured more than some people endure in their lifetime, yet she is a trooper through and through. I can remember as a child pushing through when I did not feel well, etc and even into my teen years I just kept pushing. Nothing was going to slow me down unless illness just really knocked me off my feet. My girl? she is just the same way, but multiply that by 10!
Going on day 3 of a migraine, she has endured and went to school, only coming home yesterday early by just a couple of hours. Now, this is not to say she is "happy" with me telling her she just needs to try to get through her day, but she is learning how to cope (a life lesson I am trying to teach her for when she is in her adult years and the fact that everything can't put life on hold for you). Also, since September 2011, she has had excruciating back pain that has endured even until now. I say this pain is a blessing in disguise because due to this pain, she was seen by specialists and two other issues were found (thankfully treatable); had the back pain not flared, who knows how long she would have gone on suffering in "silence". And, finally, the potential culprit of her back pain most likely has been discovered--scoliosis! Wow, I didn't see that coming. Even me, with an untrained x-ray reading eye, could see the curve in her spine. Just how curved, to what degree? we will find out the end of this month. Through this all, what does my girl do? she perseveres and simply amazes her mom.
I have truly been blessed with such an amazing young lady. I am proud to call her daughter!
Amanda Victoria, mommy loves you and you inspire me through all that you have endured in your life thus far. God has an amazing plan for your life, and this is all part of His plan. Why we have to suffer is only due to the fall of man and sin. But, young lady, you are simply amazing! I love you!
Amanda is such an amazing young lady. Perhaps I am a little biased being her mom and all, but truthfully, she awes me with her determination in all things no matter what is thrown her way. She has endured more than some people endure in their lifetime, yet she is a trooper through and through. I can remember as a child pushing through when I did not feel well, etc and even into my teen years I just kept pushing. Nothing was going to slow me down unless illness just really knocked me off my feet. My girl? she is just the same way, but multiply that by 10!
Going on day 3 of a migraine, she has endured and went to school, only coming home yesterday early by just a couple of hours. Now, this is not to say she is "happy" with me telling her she just needs to try to get through her day, but she is learning how to cope (a life lesson I am trying to teach her for when she is in her adult years and the fact that everything can't put life on hold for you). Also, since September 2011, she has had excruciating back pain that has endured even until now. I say this pain is a blessing in disguise because due to this pain, she was seen by specialists and two other issues were found (thankfully treatable); had the back pain not flared, who knows how long she would have gone on suffering in "silence". And, finally, the potential culprit of her back pain most likely has been discovered--scoliosis! Wow, I didn't see that coming. Even me, with an untrained x-ray reading eye, could see the curve in her spine. Just how curved, to what degree? we will find out the end of this month. Through this all, what does my girl do? she perseveres and simply amazes her mom.
I have truly been blessed with such an amazing young lady. I am proud to call her daughter!
Amanda Victoria, mommy loves you and you inspire me through all that you have endured in your life thus far. God has an amazing plan for your life, and this is all part of His plan. Why we have to suffer is only due to the fall of man and sin. But, young lady, you are simply amazing! I love you!
Subscribe to:
Posts (Atom)
